#PoeticAnswers 77 – When Will I Be Better?

I am sick,
I am sick of being sick.
It’s been six or seven years of
Things being in a constant state of wrong
With my brain and my body and
Being used as a punching bag by bugs and infections,
Leaving bruises, scars and lesions and being beaten
Black, blue and bloody by my immune system
And I am sick of it.

I spent seventeen years in education
Yet my blood, brain and urine
Have been through more tests than me.
And they don’t get it easy because
There’s no pass or fail,
Just sets of numbers I don’t understand
And positives that can have negative connotations
And negatives which could be the best thing for me.

I’ve spent the last five years,
Going in and out of doctors and hospitals
Leaving barely enough time for the revolving doors to spin,
Travelling between wards and beds like
Hotel rooms on the worst overnight stay of my life,
Never staying still long enough to sleep
Or see the latest test result.

I’m treated like a science experiment,
Laid bare for doctors and nurses to test
Both myself and themselves.
I feel like a broken vending machine,
With pills being poured into my mouth
Like pound coins of imprecision
By professionals who can only pray for
The right result.

I’ve spent far too long
Being a rebel crying out for change
Being told that my version of better isn’t the best thing for me,
I’m sick of waiting for eventually and tomorrow and the next day,
I’m sick of wasting my life away in
A busy hospital terminal, waiting for my
Flight number to be up.

Question from my good friend, Courtney.

#PoeticAnswers 76 – Can You Describe The Most Peaceful Moment You Ever Experienced?

It was the calm after a
Torrential downpour of depression
Which washed away my sensibilities.

It was after the storm in my head
Subsided into the choked whispers
Of voices who would leave me high and dry.

Nothing leading up to the moment was peaceful,
My body and brain fighting tooth and nail,
Fighting my will to not fight anymore,
My breath becoming a shallow imitation and
Turning into a desperate rasp,
My pulse frenetic and thrashing like a shark in a cage
Filled with a rage that fills it with a desire to survive.

Until the noose buckled.
And I crashed down with the weight
Of myself and the world
In slow motion.
A dark euphoria of
Pins and needles crawling like
Electric insects through my veins,
Tingling and tearing through my body.
My ears ringing like
The the sound of a thousand flatlines,
Loud enough to drown out the world.

In this moment,
There was no guiding light,
There was no distraction.
Just calm,
Just darkness,
Just perfect quiet.
Just reminders that
I am alive.

Question from Delaney A. from Facebook

#PoeticAnswers 70 – How Are Sunglasses Made?

How Are Sunglasses Made?

I didn’t get my sunglasses overnight.
It took years for my vision to
Succumb to this degeneration
Which leaves me wearing sunglasses
Every day.
And every night.
And every waking moment.
You see,
It started as a smudge
That wouldn’t go away.
Like a permanent stain
Creeping and crawling to and from
My eyes and my brain.
Making everything a little
Grey and hazy,
Dangerously driving me crazy
Until it became a permanent mist,
A permanent state of grey
Blocking out the light with
Like a low level filter that was
Cutting the bright from my life.
Before descending into a circling storm,
Black clouds,
Heavy and dense,
Falling and crashing,
Like eyelids against the tide of midnight
Tainting my eyes with shadows of doubt
That can’t quite turn off the light.
Leaving me with this tinted view
Of life, of love, of the world
Through lenses Of black.

Question from Laura W. from Facebook

#PoeticAnswers 63 – Where Are Your Tears Hiding?

They’re trying to hide in the weather,
Behind warm mists and bitter frosts
And rain on the lens of my glasses.

They’re trying to hide under my fingernails,
And walls of stressed, red brick
Decorated with black and blue shadows.

They’re trying to hide behind my eyelids,
Locked and sealed up tight,
Doors to a world I’m too afraid to open.

Question from Michael Clark from Facebook

#PoeticAnswers 47 – Will You Leave The Door Open?

Will you leave the door open
After all I’ve done?
Will you forget and forgive,
Or does a single moment
Hold more power than
A lifetime of happiness?

Will you lock the door?
Will you define me
By my indescretions?
Will you confine yourself
To our bedroom and
Leave me out in the cold?

Will you put the chain on the door
And wrap it around your heart?
Will you feel like you need to
Protect yourself from me?
Once you’re safe,
Will you let me defend myself?

Will you leave the door open
After all is said and done?
Will you leave the door open
And let me redecorate our bedroom with apologies?
Will you leave the door open?
Will you still be there?

Today’s question was overheard on the streets of Edinburgh. Thank you, stranger.

#PoeticAnswers 42 – Is My Autism Showing?

Is my autism showing?
I feel like it is.
But unfortunately it doesn’t fit
In my shirt or jeans.
It just spills out uncontrollably
Like a nosebleed when you get nervous,
That happens to other people, right?
The tension builds up in your head,
And the pressure becomes too intense
And then it doesn’t know how to come out
Except as a volcanic eruption of red and mucus and-

I’m sorry you don’t want to hear about that
Sometimes I don’t know
What it’s appropriate to say or when.
And every now and then
Surrealist and existential garbage
Falls out my mouth like
Teeth in a bad dream,
A non-stop avalanche of confused and contrived
Word-like noises that have some semblance
Of an order that
Hopefully makes sense.

When you put white light through a prism,
It creates and exposes all the colours
On the visible spectrum.
Autism exists in this spectrum.
It might not be obvious
You might not see it
And maybe that’s because you’re colourblind
Or more likely
You don’t know what it looks like.
So it merges into the tail-end of
Indigo-violet, near invisible to you because
We’re not on the same wavelength.
But I see it all the time,
Like a near ultraviolet ghost
Using me as a host
And others like me.
Pretending to be a cape,
Letting me pretend to be a superhero
As if somehow I have superpowers.

Sometimes, I don’t really understand
Anything at all.
We all have a brain that’s bespoke
But I’ve got some manufacturing defects.
I’m wired like a sentient bomb
Too afraid to go off because
I don’t know what I’ll do.
I make and mix up my
Metaphors and malaphors
And I use the same lines and similes
Like a man who can
Make and mix up his
Metaphors and malaphors
Because I like patterns,
I see the patterns in daily life and
Have a carefully constructed routine,
Making my life on an assembly line,
Staying consistent and clichéd.

But it’s a losing battle,
This is an ever changing world
And things break and evolve and devolve
And I can’t prepare for that.
My mental preparation is effectively
To stay in a constant state of anxiety,
Living in a permanent panic attack,
Staying on edge with a brain that’s ready to crack,
Taking beta-blockers and antidepressants
To hide the frustration and confusion
And stop the compulsion to do something
Stupid.

But everything I do
Is stupid,
I’m clumsy and wrestle
And tumble and stumble
Over things like a
Drunk in a dark room
Hallucinating that it’s a minefield,
Falling over shadows and shapes
That aren’t actually there,
Hitting my head on walls and my hands
As they flail like a fish out of water
Clutching for something
Or someone to lean on because
I’ve needed additional support all my life.
School work assistance
Not because I didn’t know what I was doing
But because I didn’t know how to
Verbalise it.
Or even write it down.
I couldn’t hold a pencil and write until I was ten.
Because my brain wouldn’t work that
Because my hands couldn’t comprehend
How to work a piece of wood and lead
Because I’m stupid.

And everything I do
Is stupid.
I keep a firm grip on my childhood
Because it’s a coping mechanism.
Unchanging and consistent,
Using stories and Disney movies
As a hoping mechanism,
Playing Yu-Gi-Oh cards by myself
Because it’s a safe way to fight my demons
Because it just makes sense.
I don’t expect you to understand.
But I grew feeling different,
And these were the things I could relate to,
These are the things that let me feel normal.
Because there was so much that didn’t.

I am not stupid,
The occupational therapist told me
I am not stupid.
That my brain is special,
It’s like having a superpower.
But my brain is supposed to have a superpower,
Then I will play at being the superhero.
Like a pseudo-savant
Playing words and emotions
Like I’m playing piano
Hitting all the right notes,
Solving problems and curious incidents
Like a synth pop Sherlock,

I’ve spent eighteen years
Fighting my lack of confidence
And lack of coordination
With elaborate orchestrations.
Playing viola and violin,
Piano and organ,
Ukulele and accordion,
Banjo, guitar, saxophone,
Drums, harp and computers,
And words.
Going from page to stage,
Performing as another person,
Playing pretend until I became able to
Play myself.
That may have came out wrong.
But as I try to tell you my story,
I’ll be brutally honest as I wrestle
And tumble and stumble with my words
As I become more and more exposed
As I realise it’s becoming too real
And I start to panic and become manic
And words start to fall out my mouth
Like teeth in a bad dream
And my nose starts to bleed and
I don’t know anymore.

How can something invisible
Make me feel so exposed?
I hate change but it’s all I want for me
So, when I ask if my autism is showing,
It’s because it feels as obvious as
A part of glasses or a broken leg,
A debilitating disability
Dressing as a superhero
But the cape’s staplegunned to my shoulders.
I never wanted this.

Question from yesterday’s poem.

#PoeticAnswers 41 – What Do You Think About When You’re Alone In Your Car?

I make the same journey every day and every day it’s different.

Memories and thoughts pass like cars on a busy highway,
Never stopping, just always moving
Rushing like they would rather move along
And be safe at home,
Away from the stop and start trouble and
Hustle and bustle of Edinburgh traffic.

Sometimes,
My mind travels far and wide,
Clocking in more miles than this
Little Volkswagen Beetle that
Crawls along at a steady pace
In the rat race of ife.
I think about what could have been what should have been and everything in between.
Like, what if I was related to the queen or
What if I asked out that colleague on a date,
What if they asked me out on a date,
Would either of us say yes,
Would it just be a regret?
Would I rather be invisible or psychic,
Are both powers essentially the same,
Have I just lost the game?”
And other conundrums and questions that
Sometimes have answers or are best left alone,
And blow away with the MacDonalds wrappers on the floor as I open my car door.

Sometimes,
I think about the mistakes that I made and the mistakes that I’m making.
Putting myself in a state of worry for twenty minutes
As I ponder and wonder
“What if my colleagues find out I’m autistic?
Is my autism showing or did I hide it?
Is it obvious that I’m always in a panic?
Can they see I’m not properly medicated?
Are my thoughts racing because of the mania,
Or just because I’m driving faster?
Am I driving faster because of the mania,
Or because my thoughts are racing?
Did I skip that red light?
Is that police car waiting for me?
Is that police car going to my house?”
Then I realise that I’m
Trapped in a carbon and fibreglass coffin,
Strapped in for my own safety,
With only my tears and fears for company.

Until I open the door,
And feel the rain and wind
Wrap around me like a familiar cold comfort.
Watch the rubbish fall out and fall apart,
And then I breathe again and go home

Question from Megan C. from Facebook

#PoeticAnswers 28 – So, What Do You Do?

#PoeticAnswers 28 – So, What Do You Do?

I work for the Government.
It sounds a lot cooler than it actually is.
I work in Government finance and
Administrate Government grants
To help local councils develop their
Green and low-carbon infrastructure
To help promote the uptake of
Active travel and electric vehicles.

I play video games.
It sounds a lot cooler than it actually is.
Essentially, I just sit around
On my arse all day,
Pushing buttons and fiddling with joysticks,
Reminding myself of my previous,
And slightly more devious,
Sex life.

I play musical instruments.
It sounds a lot cooler than it actually is.
Piano, accordion, ukulele and banjo
Amongst a few others which,
In conjunction with my vape and my
What can only be described as “questionable” facial hair,
And the wafro which encompasses and cushions my skull,
Effectively makes me the world’s ultimate hipster.

I write poetry.
It sounds a lot cooler than it actually is.
It does nothing for the hipster stereotype
That I established in the previous stanza,
Nor does it make me sound like any less
Of an absolute wanker,
The only way I could possibly be worse
Is if I could actually afford a Macbook.

I see a therapist.
It sounds a lot cooler than it actually is.
It’s mostly just talking about
What I’ve been doing and
Why I’ve not been to see them in two months,
Which leads to further conversations about
My relationships, or apparent lack of them,
Resulting in deep-sea dives into my personality.

I suffer from bipolar disorder.
It sounds a lot cooler than it actually is.
It’s like a low-budget rollercoaster,
Only ever hitting highs and lows
Or somewhere in between,
Making me see things that can’t actually be seen.
Making unscheduled stops in places I don’t know,
Driving me off the rails like a runaway train.

I self-harm.
It sounds a lot cooler than it actually is.
I lock myself away emotionally and physically,
Hiding inside the shattered remains of my
Already fractured mind.
Smoking, bruising, purging, cutting,
Using my body as a punching bag
To knock some sense into myself.

I spend a lot of time thinking about suicide.
It sounds a lot cooler than it actually is.
Wondering why it would be better
To let my helter-skelter life
Plummet off the edge of the waterfall
At the end of my shallow-water life.
It’s the result of nihilism instilled by
Self-doubt, mental health, and life choices.

And having to work for the Government.

Question from Lisa T. from Facebook

#PoeticAnswers 24 – What Can I Do To Make The Situation Better?

Text, call,
Pick up the phone,
Be there however you can.

Make sure they’re safe
Ask a question,
Take a breath.

Move the pills,
Move the drink,
Move the knives.

Keep 999 on speed dial
Distract,
React,

Be appropriate,
Cool them down,
Keep them warm.

Let them be human,
Let them breathe,
Let them cry,

Remember this isn’t about you.
Hold them close, give them space,
Give them what they need that makes them feel safe.

Remind them someone is always there.
If you can’t be present, be a presence.
Let them know they’re never alone.

Question from Megan C.

#PoeticAnswers 14: What Is A Home?

A home is where the heart is
And the wifi connects automatically.

A home is what we built together,
Because the moment we met, we connected.
There was never a weak signal or
Stone walls in the way of our love.
You had my heart and I had yours,
Our bodies wrapped around each other
Like scaffolding conducting the
Heat and beat of our hearts.

A home is where the walls keep you safe,
Your arms were my walls and
You had my heart and I had yours
The foundation of our love was stronger than
Any form of bricks and mortar,
The fire in our hearts
Resonated through the walls and floors
And the echoes sounded like roars
In the halls of each other.

A home is where I expected us grow old
But all we did was grow cold to each other
Because there were cracks in the walls
That we covered with duct tape and paint
To keep things looking like they were okay
Rather than take the time to
Work together to fix it like we did before.
You put up doors and locked yourself away,
Leaving me wondering what mistake had I made?

A home is where there are no secrets,
But you built a nursery all on your own
And bolted the door to keep me out of your life.
The only time it was open was when you slipped away at night.
I thought we were in this together,
I’d have built you a wheelchair with my bare hands
To give you the support you needed,
I’d have built a crib with my bones because
I would have given everything to keep both of you.

A home is where you left our daughter
And now she’ll never know the value,
Of unconditional love.
Now there’s an empty hole where
Our heart and her bedroom should be
I’d have broken down everything in my way
If it meant I’d know the truth.
Because she would have been the only person
I could love more than I loved you.

A home is what you used to be,
Now your eyes are double-glazed over
And the warmth is already lost.
Now you’re an empty room with
A door I’m afraid to open.
I still keep the embers of our fire going.

Question from my friend and cuddlebuddy, Arzoo.